Assessment of Social Support for a Mother Raising a Child Diagnosed with Asperger Syndrome, as Experienced by her Family. A Case Study
Konteksty Pedagogiczne nr 2(13)/2019
pdf

Keywords

Asperger syndrome
autism spectrum disorders
adulthood
family
social network
social support

How to Cite

SZAFRAŃSKA, A. Assessment of Social Support for a Mother Raising a Child Diagnosed with Asperger Syndrome, as Experienced by her Family. A Case Study. Pedagogical Contexts, [S. l.], v. 2, n. 13, p. 161–175, 2019. DOI: 10.19265/KP.2019.213161. Disponível em: https://kontekstypedagogiczne.pl/kp/article/view/217. Acesso em: 3 jul. 2024.

Abstract

The article discusses a variety of issues related to social support given to Polish families raising a child with Asperger syndrome. The questions regarding the position of Asperger syndrome in the current ICD-10 classification are presented along with the full spectrum of problems faced by people with this type of disorder. The article also discusses selected issues related to the functioning of the whole family. Theoretical considerations focus on social support understood as a special kind of assistance provided to a family in a difficult situation. The paper analyzes the features of the social network, including social support networks, along with the changes that have taken place in these structures. The article also discusses the sources and types of social support experienced by the family in a 10-year period.

https://doi.org/10.19265/KP.2019.213161
pdf

References

Attwood, T. (2013). Zespół Aspergera. Kompletny przewodnik [Asperger Syndrome. A Complete Guide], transl. A. Sawicka-Chrapkowicz. Gdańsk: Harmonia Universalis.

Autyzm – sytuacja dorosłych. Raport 2013 [Autism – Situation of Adults. Report 2013]. (2014). Warszawa: Fundacja Synapsis.

Axer, A. (1983). Społeczne systemy oparcia w środowisku chorego psychicznie [Social Support Systems for the Mentally Ill]. Studia Socjologiczne, 4(91), 191–223.

Bizoń, Z., Kokoszka, A., Roszczyńska, J., Bryła, L. and Wojnar, M. (2001). Ocena otoczenia i oparcia społecznego według Zdzisława Bizonia. Opis metody i jej zastosowania [Assessment of Social Environment and Support According to Zdzisław Bizoń. Description of the Method and its Applications]. Psychiatria Polska, 35(4), 617–634.

Chojnicka, I. and Płoski, R. (2012). Polska wersja wywiadu do diagnozowania autyzmu ADI-R [Polish version of the ADI-R (Autism Diagnostic Interview – Revised)]. Psychiatria Polska, 46(2), 249–259.

Ekas. N., Lickenbrock, D. and Whitman, T.L. (2010). Optimism, Social Support, and Well-Being in Mothers of Children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 40(10), 1274–1284.

Grootscholten, J.A.C., van Wijngaarden, B. and Kan, C.C. (2018). High Functioning Autism Spectrum Disorders. Consequences for Primary Caregivers Compared to Schizophrenia and Depression. Journal of Autism and Developmental Disorders, 48,1920–1931.

Gryniuk-Toruń, I. (2017). Profesjonalna pomoc rodzinie z dzieckiem lub dorosłym z ASD. Terapia rodzinna [Professional Help for a Family with a Child or an Adult with ASD. Family Therapy]. In: K. Patyk and M. Panasiuk (eds.), Wsparcie młodzieży i dorosłych z zaburzeniami ze spektrum autyzmu [Support for Adolescents and Adults with Autism Spectrum Disorders] (pp. 340–364). Sopot: Gdańskie Wydawnictwo Psychologiczne.

Gutkova, S. (2012). Wywiad w badaniach jakościowych [Interview in Qualitative Research]. In: D. Jemielniak (ed.), Badania jakościowe. Metody i narzędzia [Qualitative Research. Methods and Tools] (pp. 111–129), Vol. 2. Warszawa: PWN.

Heiman, T. and Berger, O. (2007). Parents of Children with Asperger Syndrome or with Learning Disabilities: Family Environment and Social Support. Research in Developmental Disabilities, 29(4), 289–300.

Kryteria diagnostyczne z DSM 5: Desk Reference. [Diagnostic Criteria from DSM 5: Desk Reference]. (2015), P. Gałecki and Ł. Święcicki (eds.). Wrocław: Edra Urban and Partner.

Mazzone, L., Ruta, L. and Reale, L. (2012). Psychiatric Comorbidities in Asperger Syndrome and High Functioning Autism: Diagnostics Challenges. Annals of General Psychiatry, 11, 16.

Międzynarodowa Statystyczna Klasyfikacja Chorób i Problemów Zdrowotnych – X rewizja [International Statistical Classification of Diseases and Health Problems – X revision]. (2008). Vol. 1 (pp. 248–249), http://www.csioz.gov.pl/src/files/ klasfikacje/ICD10TomI.pdf [accessed: 6.11.2015].

Ozonoff, S., Dawson, G. and McPortland, J.C. (2015). Wysokofunkcjonujące dzieci ze spectrum autyzmu. Poradnik dla rodziców [High-functioning Children on the Autism Spectrum. A Guide for Parents], transl. A. Haduła. Kraków: Wydawnictwo Uniwersytetu Jagiellońskiego.

Pisula, E. (2015). Rodzice dzieci z autyzmem [Parents of Children with Autism]. Warszawa: PWN.

Pisula, E. and Porębowicz-Dörsmann, A. (2017). Family Functioning, Parenting Stress and Quality of Life in Mothers and Fathers of Polish Children with High Functioning Autism or Asperger Syndrome. PloS One, 12(10).

Płatos, M. (2016). Ogólnopolski spis autyzmu. Sytuacja młodzieży i dorosłych z autyzmem w Polsce [National Autism Inventory. The Situation of Young People and Adults with Autism in Poland]. Warszawa: Stowarzyszenie Innowacji Społecznych “Mary i Max”.

Prata, J., Lawson, N. and Coelho, R. (2019) Stress Factors in Parents of Children on the Autism Spectrum: an Integrative Model Approach. International Journal of Clinical Neurosciences and Mental Health, 6, 2.

Radochański, M. (1991). Rola rodziny w zmaganiu się ze stresem wywołanym chorobą somatyczną [The role of the Family in Coping with Stress Caused by Somatic Diseases]. Problemy Rodziny, 6, 6–10.

Rosenberg, R.E., Kaufmann, W.E., Law, J.K. and Law, P.A. (2011). Parent Report of Community Psychiatric Comorbid Diagnoses in Autism Spectrum Disorders. Autism Research and Treatment. August 2011.

Rybakowski et al. (2014). Zaburzenia ze spektrum autyzmu – epidemiologia, objawy, współzachorowalność i rozpoznawanie [Autism Spectrum Disorders – Epidemiology, Symptoms, Co-morbidity and Diagnosis]. Psychiatria Polska, 48(4), 653–665.

Sęk, H. and Cieślak, R. (2004). Wsparcie społeczne, stres i zdrowie [Social Support, Stress, and Health]. Warszawa: PWN.

Smith, L.E., Hong, J., Seltzer, M.M., Greenberg, J.S., Almeida, D.E. and Bishop, S.L. (2010). Daily Experiences Among Mothers of Adolescents and Adults with Autism Spectrum Disorder, J Autism Dev Disord., 40(2), 167–178.

Smith, L.E., Greenberg, J.S. and Seltzer, M.M. (2012). Social Support and Well-being at Mid-life among Mothers of Adolescents and Adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42, 1818–1826.

Smith, L.E., Greenberg, J.S. and Mailick, M.R. (2012). Adults with Autism: Outcomes, Family effects, and the Multi-family Group Psychoeducation Model. Current Psychiatry Reports, 14(6), 732–738.

Strumińska-Kutra, M. and Koładkiewicz, I. (2012). Studium przypadku [Case Study]. In: D. Jemielniak (ed.), Badania jakościowe. Metody i narzędzia [Qualitative Research. Methods and Tools] (pp. 1–40), Vol. 2. Warszawa: PWN.

Van Bourgondien, M.E., Dawkin, T. and Marcus, L. (2014). Families of Adults with Autism Spectrum Disorders. In: F.R. Volkmar, B. Reichow and J.C. McPortland (eds.), Adolescents and Adults with Autism Spectrum Disorders (pp. 14–40). New York: Springer.

In accordance with the recommendation of the Ministry of Science and Higher Education, which aims to counteract the practice of “ghostwriting” and “guest authorship,” all authors submitting their text for publication should attach an author’s statement which declares the contribution of each of the authors to the article. The printed and signed statement should be delivered by mail or other means to editor-in-chief Joanna Skibska or sent in the form of a scan to the following e-mail address: redakcja@kontekstypedagogczne.pl. The authors will not receive remuneration for publishing their papers. The editors reserve the right to make minor editorial changes to the articles which will not affect the substance of the article. We encourage all authors to prepare their articles in accordance with the guidelines for manuscript preparation. Download pdf file.

Authors transfer all copyrights and grant the journal the right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with acknowledgement of the work's authorship and initial publication in this journal. All authors agree to the publishing of their email addresses, affiliations and short bio statements with their articles during the submission process.

Downloads

Download data is not yet available.